hasbro

Does it Sound Like I’m on Old Time Radio?

If you follow the Pressure Support Twitter feed then you know that we had a fun and exciting morning. We packed up and hit the road early (early for us anyway) to get to the local Citadel Broadcasting headquarters to be interviewed for the radio!

Long time readers of the blog will remember that last year we were asked to appear on a local TV program to sing the praises of Hasbro Children’s Hospital in the lead up to their annual fundraiser walk.  This appearance actually stems from that opportunity. In April the Citadel Broadcasting group of radio stations (I’ll post a list as the event comes closer) will be broadcasting the Hasbro Children’s Hospital Telethon which we have been asked to participate in.  I’ll post all the details as the event comes closer as well as how you can help and donate. During the telethon, which will of course be a live event, all of the participating stations will also play musical montages that contain pre-recorded interview clips. That’s what we took care of this morning.

It was fun. We got a tour of the station and spent like 20 minutes bragging about Liam and  telling stories about our friends at Hasbro who have done so much to help us. Everyone there was of course instantly smitten with Liam. He was a big hit.  Just wait til they get a chance to see him awake.  Yep, that’s my boy, probably the most excitement he’s had all month but Liam decided to sleep through it all.  Anyway, I’ll do a big build up to the telethon itself when it gets closer and will try to post some kind of audio file of the interviews if I can but for now its time to get some sleep since we all got out of bed earlier than normal this morning.

So yes, I’m tired. And yes, I know that I say that a lot.

Before I try to sleep though, here’s a cell phone shot I snapped just before we started the interview. That’s Karen who interviewed and recorded us.

Oh and by the way, the friends that I talked about in the last post went home from the hospital today. Yay!!

Sending Happy Thoughts

Like most things, the only way someone can truly understand what its like to have a child with special medical needs is to have a child with special medical needs. So it stands to reason that having special needs children in common can be enough to forge a strong bond of friendship between families. I smile politely and try to knowingly laugh along with friends and co-workers and their tales of “normal” two-year old woes.  Picky eaters, mess makers, and first words, it’s all greek to me — completely foreign. I’m not bitter or bregrudging them their happy stories I just can’t relate to the experiences. Having friends who can relate to oxygen tanks, feeding pumps and nursing care can be a key to sanity.

Liam has had a great week. His big buddy, our day nurse, is out of the hospital and worked for 6 hours a day on Wednesday, thursday and friday giving Karin and I a bit of rest and the helping hand we’ve so badly needed. Liam has been responding well even if slowly to the change in doses for his seizure meds and has been an overall pleasure all week.

Unfortunately his bestest buddy, a toddler with some similar medical issues, has spent most of this week in our least favorite local hotspot, the Hasbro Children’s Hospital.

Karin and I are experts on staying at Hasbro. so when we know that people we care about are there it’s hard not to imagine what they are going through. As such, they have been in my thoughts all week. I went to visit for a few minutes a couple of days ago but was embarrassed by the attention I received from some of the hospital staff. We’ve grown close to many of the staff in the PICU but I was hoping to slip in quietly and support my friends without much of a fuss made. I was only partly succesful on that front. Hopefully not a bother to our friends but I’m pretty sure that I may have been a little annoyed watching friendly reunions in Liam’s hospital room while we were fighting the stress of our first few days of a stay.

Anyway, I’ve been sending as much positive energy as I can towards the PICU for them and if you could do the same it’d be appreciated. Not only for my friends, they’re a tough, resilient and loving family who have the strength and experience to make it through this (even if they’re not sure of that themselves) but for all the families facing a hospital stay. Unless you’ve lived it you’ll never understand just how difficult it can be.

The Kick is Up…and It’s Good!

I am taking a break tonight from heavy posting and will return with a PICU PRessure piece tomorrow.  Tonight I am going to finally watch District 9 and maybe read a few chapters in The City & The City by China Mieville (which I am enjoying a great deal).  But before I retire I’d like to applaud the place kicker from the New England Patriots for pledging to donate to Hasbro Children’s Hospital every time he kicks a field goal or an extra point. Way to go Steve! I will say though, with the defense looking like it is I hope Mr. Gostkowski is kicking a whole lot more extra point attempts than field goals.