I asked for the day off months ago. I decided last year when this crazy calendar coincidence was brought to my attention that I wouldn’t be going to work on that date anytime soon. July 26th. A Friday this year. Inventory day. I don’t take Friday’s off, especially when I have to work on the Saturday and Sunday anyway. It wasn’t as if I was even giving myself a three-day weekend. I don’t work on July 26th anymore. I stay home and lock it down.
Lock it down day.
July 26th 2011. An Ambulance ride. A prep for Emergency Surgery. A perforated Appendix. An intestinal mal-rotation. It was the first day of 42 a day hospital stay that would include A blood stream infection, sceptic shock, post surgical ileus, multiple complications of his seizure med routine due to access issues resulting in huge seizures.
July 26th 2012. To tell you the truth I don’t remember how we got him to the hospital this time. I do remember that it was only 14 hours after we had been discharged from Liam’s week-long elective hospital stay to start the ketogenic diet. A back and forth that included a 104 degree fever. Gall stones (a side effect of Long time TPN nutrition and inflamed by the high fat ketogenic diet), a line infection. It was the first non-elective day of a month-long hospital stay that would include another blood stream infection. another case of sceptic shock, a post traumatic ileus, multiple complications of Liam’s seizure med routine due to access issues resulting in huge seizures.
July 26th 2013. Nothing. No ambulance rides. No car rides. I don’t think I even put on shoes. Liam slept in and then we watched movies on the couch. We didn’t do laundry, we didn’t do housework, we didn’t do anything other than watch tv, and read, and relax, and that was just fine with us, it was completely by design. Cocooned from the world in our little bubble we hunkered down and beat back the calendar. July 26th would be ours again! Our own family holiday.
Lock it Down Day.
Feel free to mark your own calendars next year and join in the fun. At its heart it is a pretty easy holiday to observe. All you have to do is NOT take your child to the hospital to begin a long term intensive care stay.
It’s already become my favorite holiday.