A Wave


I started out writing a big long post about setbacks and how frustrated we were at the behavior of some of our doctors today but it was mostly borne of frustration and anger and it just plain wasn’t working. There’s a larger point in it somewhere but I just don’t have the mojo to grind it out tonight. I’ll work on it for a later post sometime.

So instead you’ll have to settle for an awesome photo (taken by Karin and messed around with by me), a wave hello and thank you all for reading. It’s a whole lot more rewarding to blog knowing that so many of you keep coming back for more.

PRO TIP: Nurses love it when you record the IV Pump alarms on your cell phone and play them at random times as they try to set and re-set the array of pumps by the bedside.

No seriously, if you find the right group of nurses, and they are out there, this bit kills. They work through some serious shit most days and are generally appreciative of a good laugh. You gotta learn to pick your spots though. Be sure you can read the signs that there aren’t any traumas or that they’re short-staffed before you go playing pranks. Safety first here people.

That’s all I’ve got. Bit of a setback here today and I hope that it passes quickly but Liam is hanging in there. At least we’ll get to ride out the hurricane in one of the safest places around.


  1. Hey bud, good to see a picture of the big guy, Jeanne has been keeping me pretty informed, I feel terrible for not making it up. I eagerly anticipate all of your blog posts and enjoy reading them, yet some are heartbreaking, I appreciate you and Karin keeping us all informed.

    Keep the faith bud and Know that I am in your corner and am here if you want to meet up and let off some steam.

  2. I like the photo. I have a whole bunch of vector borders I should burn a disc of and send over to you or FTP ’em. Didn’t know you were into that kind of thing. Find out more and more about you each day, and each reveal says ‘BRO’ on it.

    Cannot WAIT for you guys to get out of there man. You have been in there way too long. Way too long. I wish you all were further up on the List. A device would really help pass the time. I gotta try to get that moving along. I have surgery tomorrow though, so I’ll be off my butt for a while.

    Hope the Hurricane takes a wide right…

  3. always look for the the good stuff!
    he looks beautiful 🙂
    he is lucky the God gave him parents like you guys !!

  4. always look for the the good stuff!
    he looks beautiful 🙂
    he is lucky that God gave him parents like you guys !!

  5. Ditto to what Paula said! I’m sorry to hear about the setback and I hope everything is going uphill again. Sending you love, hugs, and prayers from NJ. Think about all of you all the time. XOXO

  6. My beautiful boy. I miss you guys. I usually can’t read the blog because I feel like I’ve abandoned you…but now and then I need a Liam fix :~). And the IV pump alarm thing is hysterical. If I ever come back as your night nurse you should make Linus and Calvin do weird cat noises to scare me!

  7. Hi
    My name is Jenna and i came across your site. Liam is an amazing, presious, special, earthly angel. He is a courageous, strong and determined fighter. He is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and love it when people sign my guestbook. http://www.miraclechamp.webs.com

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