A Change in Direction

Instead of writing posts I spent a lot of computer time over the weekend tinkering around with the blog’s appearance and such.  After a few tries and a bit of frustration I’ve settled in on something,…something…well, it’s something alright.  I don’t know anymore.  I’m not really thrilled with it but it’s simple and it’s clean and it does what it’s supposed to do.  Which is sit politely around the words that I write and try not to get all flashy and distracting.

I’ve also been working on some of the other static content for the page that will make its way online in the next few days.  The About page of course needs some work and I’d like to add a FAQ tab above for some of the details I have covered in the past so that I can refer to the complicated stuff instead of repeating myself in future posts.  The process can be difficult at times though as there is a line of privacy that I would like to maintain about Liam and our family.  I never intended for this blog to be all about medical terms and hospital stays, and in fact this space was originally intended to be an escape from that.  All’s well that ends well I guess, because I know now that Pressure Support needs to be about living in a household with special needs.   It’s not the easy updates to family and friends that make it worthwhile or the fact that the whole situation has gotten me inspired and motivated to write.  It’s the hope that some family sitting in a NICU or PICU and terrified of the prospect of bringing their child home with a trach and ventilator stumbles upon us here to see that life with special medical needs can be pretty boring when it’s poorly written.   Typos, missed commas,  I’m always using the wrong form of its and I’ve got one seriously messed up sleep schedule but it all feels so . . . normal.

Anyway, consider this an official notice of what anyone reading in the last three months already knows.  That after rambling and blathering on about nothing in particular for a start, Pressure Support has found some kind of center.   A mission of sorts.  Actually, on Saturday I had a “business meeting” with a friend which involved some exciting oppurtunities that I will announce here if/when they become more official.  At this point it’s just about buckling down and doing the work.  All of  this doesn’t mean that I still won’t wander off topic and spew my opinions about wildly popular and successful ideas that I’ve hated as evidenced by my last post, but for the most part we’ll be talking about life in Liam’s house.  It may be different, but its probably a lot more ordinary than you think.

2 comments

  1. love this! ” It’s the hope that some family sitting in a NICU or PICU and terrified of the prospect of bringing their child home with a trach and ventilator stumbles upon us here to see that life with special medical needs can be pretty boring when it’s poorly written. Typos, missed commas, I’m always using the wrong form of its and I’ve got one seriously messed up sleep schedule but it all feels so . . . normal.”

    great stuff:)

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